Category Archives: Family

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Back So Soon?

    Update 2/16/11:

As mentioned previously, we knew that something else was brewing with Aiden. His blood work confirmed that, and for the past several days he has been very lethargic. Yesterday morning, he developed some additional air in his upper chest (pneumomediastinum) and neck area, and has also developed some subcutaneous air (under the skin) around the neck & collarbone, which is also rather painful. The doctors are watching it closely will do more x-rays in the AM.

We were pleasantly surprised, however, that today (for the first time in several days!), he actually wanted to hold his cars, showed some interest in a movie & even colored for a little bit, which was so good to see after the past couple of days. We even saw a tiny smile!

For now, we are in a holding pattern, watching and waiting to see what happens, and praying that the additional air in his chest does not require further intervention. The doctors are still concerned that there may also be some additional GI issues flaring up to further complicate things. We are so grateful for all of your prayers and kind thoughts for Aiden. Please continue to pray that his body will begin to heal w/o further respiratory or GI complications.

2011_02_026.jpgTemporarily reunited to watch a movie at the hospital

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    Update 2/12/11:

Aiden is doing marginally better over the last few days. His blood work shows much better results as the anti-biotics are working and the x-rays show the conditions of his lungs have not deteriorated (although they have not significantly improved either). He is still on constant oxygen.

Unfortunately, he still has intense pain in the left side of the chest which is baffling considering there is nothing significantly visible on the x-rays. They did start giving some strong pain medication which has helped but he still complains of pain in the left area of his chest. And of course, he will not sleep in the bed and will only stay in his stroller (his comfort spot).

Thanks for your continued prayers!

2011_02_025.jpgIn his safe spot

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    Update 2/8/11:

Monday night was a rough night for Aiden as he had difficulty maintaining his oxygen and dealing with intense pain overnight. X-rays indicate some additional infiltrates in the left lung and symptoms indicate that he may have developed a pneumothorax that is not visible on the x-ray.

On a positive note, yesterday morning’s labs show that he is responding to the antibiotic coverage, which is a very good sign. Even so, he is still in pain and both he and Hannah are getting very little sleep at the hospital.

We are so grateful for your continued prayers!

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Aiden is back in the hospital :( Over the weekend, he got a 104 degree temperature, had difficulty breathing and had an excessive heart rate. So, we had no choice but to take him back. It appears to have been caused from aspiration pneumonia but we are waiting on x-ray results to confirm. He is back on oxygen and is clearly having some pain in his chest.

Ethan and Evan are not at 100% as one has a bad cough and the other has what appears to be an ear infection. Winters are brutal! But at least it is not as bad as last year. Nevertheless, please keep us (and especially Aiden) in your prayers.

At least we were able to enjoy the snow for a little while before all this. The entire area was pretty much shut down but the boys had a great time playing outdoors (see pictures below).

2011_02_003.jpgReady to go out and play in the snow

2011_02_005.jpgAiden loves this

2011_02_011.jpg

2011_02_012.jpgSnow everywhere!

2011_02_014.jpgEthan tries to hit me with a snowball

2011_02_019.jpgLoving it!

2011_02_020.jpgTrying to make more snowballs

Getting back to ‘normal’

Thanks for all the encouraging words and prayers! Aiden is doing much better! The new antibiotics seemed to have addressed the GI issues he was experiencing and he is feeling more like his jolly old self again. Although he is not 100% back to baseline, he is back off of the O2 and doing much better.

Ethan is also doing well. (He had experienced an asthma like attack while Aiden was in the hospital.) Aiden’s pulmonologist has prescribed a some daily maintenance meds that will hopefully help prevent another attack of this severity going forward. It is difficult enough to have one sick child, but things are significantly more challenging when two are sick!

We have been enjoying some incredibly beautiful warm weather these past two days. The boys were thrilled to finally get outdoors and soak up some sun! Some images below.

2011_01_002.jpgHere comes trouble

2011_01_006.jpgAiden is climbing to the top

2011_01_012.jpgEvan, what are you looking at?

2011_01_016.jpgGet the rings!

2011_01_019.jpgI see you

2011_01_020.jpgEthan tries to hide

2011_01_022.jpgThey love this

2011_01_028.jpgCastle Park is one of their favorites

2011_01_034.jpgAunt Aleta and Ethan bounce up and down

2011_01_035.jpgThe tongue is always out

2011_01_044.jpgTime to feed the ducks

2011_01_053.jpgGet over here duckies!

2011_01_055.jpgEvan explaining things to Mommy

2011_01_056.jpgStill explaining…

2011_01_060.jpgWhat a cute face!

Deja Vu

Update: 1/25/11 Aiden is back home but his digestive system is still not back to normal. We started his ‘feeds’ again and will see how things go. The test cultures should be available either today or tomorrow so hopefully we will have an idea of what is causing this and how to treat it.

As if Aiden’s issues were not enough, Ethan has been having a hard time breathing and is constantly wheezing. He is now on daily breathing treatments and we need to take him to see the pulmonologist to figure out how to manage this. While it does not happen very often, these respiratory issues have happened a few times in the past year so we need to get it under control.

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1/22/11 It’s January. It’s a new year. It’s NFL playoffs. It’s cold. Aiden is sick…

It is as if his medical issues are on a specific schedule. He has been unable to keep anything down and had non-stop diarrhea the last week. He was purging so much fluid that we had to take him to the hospital this morning to get an IV and he will be there through the night.

We think the root of the problem is a bacterial infection (he has no sign of viral symptoms). When this happened the last few times, the medications we used worked within 24 hours. Unfortunately, this time it seems to have no effect. So, we are hoping to get him some fluids and try another drug that has worked in the past.

He is borderline dehydrated, hasn’t been able to keep food down in two days and hasn’t slept well at all. Please keep him in your prayers that he would recover from this setback (and that it will not mean another trip to Boston).

1.1.11

At the beginning of 2010, Aiden was experiencing painful GI symptoms which caused severe abdominal pain, internal bleeding, vomiting bile, and multiple diaper changes an hour. Then there was the trip to Children’s Hospital in Boston, seizure, serious lung issues, removal of his j-tube, many, many tests, surgeries, and 4+ months spent in and out of the hospital away from home. What a way to start the year!

As always, Aiden is full of surprises for us and 2010 ended on a somewhat similar note. On the last day of the year, Aiden got x-rays of his hips and left leg. He has clearly been favoring and dragging his left leg when he walks, so our Doctor recommended some x-rays. They did not show any breaks or fractures, but his walk is definitely not normal. There are a number of other possibilities, including a pulled muscle, fluid ‘pockets’ and swelling in the joints, and several other things, but at this point we will have to wait and see. He will most likely need an ultrasound of his hips next week to rule out a couple of possibilities.

Despite all of Ethan and Evan’s ’stunts,’ other than a few bumps and scratches they have (thankfully!) had no major issues.

How to characterize 2010? It went from brutal to hopeful. It was a long year and we are glad to have it behind us. Let’s see what 2011 brings!

Happy New Year!

Christmas Spirit

…and they got plenty of it! Whether it is wrestling, dancing, laughing, tearing, eating, running or singing.

The boys got enough gifts for 3 sets of triplets! In addition to our gifts, they got more from Aunts, Uncles and Grandparents. Hopefully, this doesn’t set any future expectations. :) Hannah’s family visited in late November, Manish’s parents in mid-December, Amisha just before Christmas and Sachin (”Oak”) during Christmas. Everyone was here at some point but at different times.

The boys loved all their visitors. More people to play with and, in Evan’s case, boss around. Ethan loved having his Grandparents over and Evan told Uncle Sachin “you are my best friend.” Aiden loved having people over (as far as he is concerned, the more the merrier).

Additionally, the twins have really started taking to football. Manish tried explaining some of the players during a Philadelphia Eagles game. He told the about the quarterback, running back, etc. A week later, it was the Pittsburgh Steelers against the New York Jets. As they were watching, here is how the conversation went:

Ethan: Where is Michael Vick?
Manish: You remember Michael Vick from last week? Wow. He plays for the Eagles. That was a different game.
Ethan: I want to see Michael Vick.
Manish: That is another game.
Ethan: Is Michael Vick a good guy or a bad guy?
Manish: Well, he is working on trying to become a good guy.
Ethan: So there are two Michael Vicks?
Manish: Sort of…well, not really.
Evan: Who is that? [As he watches the television.]
Manish: That is Ben Roethlisberger.
Evan: Like a Hamburger?
Manish: No. That is Roethlisberger.
Evan: Can I eat him?
Manish: Not a hamburger, he is Roethlisberger.
Evan: What does he taste like?

Out of the mouth of babes come some of the funniest things!

The images below include the boys wrestling, decorating cookies and opening gifts. The wrestling is a lot of fun to watch although it typically ends with at least one person crying. Also, you can see from the video below that the boys (especially Aiden) love to dance. Amisha also seems to like it :)

 

 

2010_12_118.jpgThey love wrestling

2010_12_120.jpgPinned!

2010_12_124.jpgWatch out!

2010_12_136.jpgLocking up.

2010_12_137.jpgPapa and Grandma wash dishes while these two fight

2010_12_141.jpgEvan wants some more

2010_12_146.jpgHere comes the little one

2010_12_153.jpgAre you running from your brothers or to them?

2010_12_157.jpgAlmost got him

2010_12_160.jpgEthan smiles for the camera

2010_12_162.jpgAiden too

2010_12_168.jpgIntense

2010_12_173.jpgDon’t pile on him!

2010_12_174.jpgRunning around

2010_12_182.jpgEvan decorates cookies with Amisha’s help

2010_12_190.jpgHere come the sprinkles

2010_12_198.jpgMmmmmmm….

2010_12_199.jpgAiden does some as well

2010_12_207.jpgEthan’s turn

2010_12_215.jpgYummy!

2010_12_219.jpgAmisha reads to Aiden

2010_12_225.jpgThe kids are ready to open their gifts

2010_12_226.jpgSome are more ready than others

2010_12_236.jpgThe “Waste Management” garbage trucks were popular for a few minutes

2010_12_249.jpgEvan wants the Mater video to be played

2010_12_253.jpgAiden rips into his gift

2010_12_281.jpgThe “Mac” trucks replaced everything else

2010_12_287.jpgLoving it!

2010_12_303.jpgEthan devours a cookie

2010_12_306.jpgBedlam!

2010_12_318.jpgAiden and his toys.

2010_12_322.jpgHair everywhere!

2010_12_324.jpgNo boys, it is NOT a puppy!

2010_12_325.jpgSmile!

2010_12_328.jpgLet’s open it up.

2010_12_333.jpgThey love their car garage. (Putting this thing together was not fun.)

2010_12_338.jpgMore gifts?

2010_12_346.jpgOak helps Ethan

2010_12_356.jpgAiden arranged his new toys very nicely…

2010_12_358.jpg…while the twins watched some football.