Category Archives: Family

Click on the title of the blog post to view the entire entry.


Better, but not fixed

This past Wednesday, Aiden’s GI physician and surgeon scoped the tube site and surrounding intestinal area. Additionally, his radiologist reviewed the scans and the conclusion was a good/bad news situation. The good news: there is nothing showing on the scan. The bad news: there is nothing showing on the scan. The source of the problem remains elusive.

There is the issue with the hernia but the possibility of this being the source of the problem is very marginal. Regardless, he will have surgery to repair the hernia in the next week or so. The primary problems seem to have passed for now and he is able to pass things.

Meanwhile, back at home, Evan has become somewhat ill. He was running a fever of 103, runny nose, coughing, etc. All this from an upper respiratory infection. Hopefully, we will fully recover soon and be his jolly little self again.

Here are some pictures (these were before Evan was sick and he was a little happier these days).

Ethan is so excited to get to the playground

Evan, are you showing off again?

Grammie gives Ethey a push

Evan loves posing

The twins were looking for things in the mulch

His nose was running so this is how he deals with it - that is why he is sometimes called “Nosey E”

You look like you are about to do something you should not be doing

My Ethey is growing up so fast

Of course, he still does his cute little gestures

Nosey E!

Trying to climb up the hard way

No standing on the bench

They love being outdoors

What are you pointing at?

Go get them and tell them it is time to go home

He is making sure that Evan is following along

Aiden in Boston

Upset in Boston

Not talking about Scott Brown’s recent victory, but rather the fact that Aiden is back in Boston and not too happy about it. He despises having anything to do with doctors, hospitals or medical office (although I do think he still likes to flirt with the nurses). :)

Apparently, it appears that he somehow got bacteria around the feeding tube and it has eaten away the lining of his small intestine causing potential nerve damage. This is what the doctor believes is causing the intense pain. Of course, he is still having trouble passing things and the poor little boy is in such pain at times. On Wednesday, they are going to replace the tube and do a scope around the tube site.

Please keep him in your prayers and that the doctors would make good, informed decisions on the best methods of treatment.

A few recent images are below.

Evan wants his hands washed

A very concerned little bear

Ethan, what are you doing?

Aiden sways to the music

And now trying to feed Ethan

And you thought you were having a bad hair day!

You look sad

Aiden is not too thrilled about going back to Boston

But he will eventually be back

The train tracks are a big hit

So many possibilities

They opted for a simplistic train system

Aiden in Boston — consoling himself with Starbucks while waiting in the doctor’s office

New Year, New Challenges

Things have been so busy that we have literally had no time to update the blog. The title to this entry is very fitting: so far, 2010 has already brought many new challenges (and it is only January!).

Challenge #1:
It started on January 1st at 6:00AM, and perhaps is a sign of things to come for the year. We heard ‘thumping’ noises upstairs, so Manish went up to investigate. When he opened the door, the twins were not in their cribs but the bathroom light was on.

As he looked in the bathroom, there were Ethan and Evan sitting back to back in the sink. It was very cute as their little butts were just small enough to fit in. They had these huge grins on their face and were so proud of what they accomplished. Manish (ever the photographer) so wished he had a camera at that moment. They have been able to get out of their cribs for quite some time, but up until now have been very good about staying in their beds. As you can only imagine, this has become an ongoing problem the last several weeks, as they are up as early as 5:30 AM running around in the bedroom.

Challenge #2:
Poor Aiden has been through so much! He has had horrible diarhea for the last 10 days! It probably averages out to about 15-18 diapers per day. This means 11PM, 11:30 PM, 12AM, 12:15 AM, 1AM, 4AM…, etc. Also last week, he started having pain around the J-tube site again and we decided to get a CT scan. We were told by the Dallas medical personnel (radiologist, surgeon, etc.) that everything looked fine. Nevertheless, as a precaution, we overnighted the images to Children’s Hospital Boston.

Within two days they informed us that his tube was out of place and had pulled into the tract, causing significant inflammation and trauma around the site. Additionally, his right inguinal hernia (repaired in the NICU shortly after birth) had reopened. Both require prompt action, but the J-tube issue in particular requires immediate replacement. The Dallas surgeon we have been *trying* to working with has not been responsive, not even returning phone calls.

Please keep us in your prayers, because we desparately need to find someone who is able and willing to replace his tube ASAP. He will also require surgery to repair the hernia, so we may have to take him back up to Boston again in the next couple of weeks.

Challenge #3:

The feeding program! As if Aiden’s issues and the twins early mornings were not enough to deal with, getting Aiden to and from the feeding program every day has added another level of complexity. Despite the challenge, including his stubbornness and refusal to eat, we are able to get him to take bites, drinks and “chews” occasionally.

It is very interesting to watch what happens when he is compelled to eat. In the past few days, his vocabulary has dramatically increased. He even sings parts of songs! The last time he was in the feeding program (which only lasted two weeks), his physical movements took off. Within a few weeks, he started walking and talking all of a sudden. Numerous studies show that there is a connection to cognitive development and eating, which has been exciting for us to see in Aiden, even in these short spurts. Unfortunately, due to his current medical issues, he will be unable to complete the program until they are resolved.

Challenge #4:
Since their tubes fell out late last year, Ethan and Evan have also been dealing with persistent ear and sinus infections that simply would not completely heal, which has been miserable for everyone. In conjunction with our doctors, we determined that their little eustacian tubes still need some help, so today they had minor surgery to replace the ear tubes. Everything went well, and we are looking forward to them feeling better and hearing better very soon.

Challenge #5:
The weather has made things rather difficult. The frigid Canadian cold fronts have freezing (mostly) negatives impacts and doesn’t help. Everyone has been feeling confined and a little restless, but that is the least of our problems and thankfully, the nasty cold has finally passed and sunny Texas weather is returning. In fact, it was in the 60’s twice this week!

Challenge #6:
Childcare. Carolina has numerous personal commitments and will no longer be with us. We will miss her very much and the boys will always love their “Nina.” So, we are on the hunt again for someone who can handle the boys while Aiden has therapy and help with household stuff. Sonia and Dana are back in town and filling in until they go back to college but after that…uh oh! With Aiden going back to Boston soon, we need someone pretty quickly, so please keep that in your prayers.

So, in a nutshell… we don’t sleep, the house always stinks of nasty diapers, we are seldom at home and need someone to help fill in the gap. It feels like the beginning of 2008, when the boys just came home and then Aiden was sick and ended up back at the hospital. At least then it was not quite as hard on Ethan and Evan, but now they are much more aware of what is going on. Of course, it is not that bad, but we do need to get Aiden’s issues resolved as soon as possible.

There are a few pictures below. We will try to blog more often as time allows.

The boys color with Carolina

Got to love this one!

Aiden loves to ‘wrestle’

Aiden prepares for the next move

Evan yields to Aiden

Love, love, love

Hi there!

Ethan checks in on Evan

Aiden has been taking little bites of baby food

Squeezing the life out of the orange

Laugh it up

Ethan looks like a little gentlemen

They love being up there

That must taste delicious!

A classic Aiden look

And another

The boys love their new Hotwheels cars

A Winter Wonderland

For the first time in 80 years, we had a white Christmas in Dallas, TX. Can you believe it?! There is snow everywhere! The storm came through on Christmas Eve and started to melt by the next day, but there are still some patches of ice and snow on the ground. It has been very exciting for the boys…Evan and Daddy made some snowballs and threw them in the street (or at least Manish claims that is what he threw them at). Ethan, on the other hand, would not touch the snow because it was “dirty,” and he was very concerned about it getting the cars dirty! Aiden, of course, is more interested with his little toy cars than anything else. The boys are in love with the Christmas lights, and every time we see a light display, they beg to “find more Christmas trees, pleeeeeeeeeeassse?” As we were driving the other day, we saw a lighted nativity scene, and were trying to explain it to the boys. As we drove away, Ethan very sweetly said, “Find more baby Jesus, please?”

The boys loved opening their Christmas presents, and ‘helping’ everyone else, too! They are old enough now to enjoy opening gifts and are beginning to understand the concept of gift-giving. Although it was a very hectic day for everyone, the best part by far was watching the kids enjoy opening their gifts.

Aiden Update:
The doctors in Boston helped identify the cause of the bleeding and it has now almost completely stopped. He is still having some episodes of pain, but they are not as frequent as they were previously. They believe that the undiagnosed J-tube problems caused so much trauma and irritation to the tract that he developed ulcers in his large intestines. Unfortunately, there is not much that can be done other than correcting the problem and waiting for them to heal. Because the site was so inflamed and irritated, the surgeon had to put in a longer tube until some of the swelling had gone done. Since the swelling has gone down, that tube is now too large and has started causing some irritation. On Monday (12/28), Aiden will have a minor surgical procedure to replace that J-tube. Please pray that everything will go well and that the combination of the ulcers healing and new tube will help him feel better.

In January, Aiden will go back into the Intensive Feeding Program at Our Children’s House (a pediatric rehab hospital) here in Dallas. The program will be all day, every day for 5 weeks. This is the same feeding program that he started in March, but was unable to finish due to respiratory issues. Aiden’s medical team feels that this is the best ‘next step’ for him at this point, and we will see how well he does and how much he can handle. It would be wonderful if he is able to start eating more by mouth, and could get to the point where we would only have to use tube feedings supplementally. He desparately wants to eat by mouth, so please pray that everything will go well and that (health-wise) he will be able to handle it. This will also be hard on Ethan and Evan, as they cannot understand why Mommy and Aiden are suddenly gone all day. We are still trying to work out coverage so that we have someone to care for them throughout the program, which is another prayer request. Please pray that all of these details will work out and that the program will be successful for Aiden.

As we count our many blessing and begin a new year, we are so grateful for each of you, our family and friends, and so thankful for your continued support,kind thoughts and faithful prayers for our family and specifically for Aiden’s health. From our family to yours, we wish you a very happy and healthy New Year in 2010!

 

Christmas fun with Aunt Amisha: Evan helped decorate the gingerbread house

Ethan was also a big helper

Good job, boys! They are so proud of their work!

A rare picture of all three together

They loved looking at the Christmas trees at the Great Wolf Lodge

Wow, they all sat still long enough for a picture

Of course, Aiden thinks he is a little king

And another one…this is a record

A very rare picture of everyone together

Evan was a little frightened of the Christmas Carousel at first, but had a good time

Aunt Aleta stood with Ethan

Aiden loved it!

Ethan is ready to stop

They also got to look at the bear

Frozen water

Snow is everywhere

Evan is loving Christmas!

Ethan too

And of course…

Boys, that is not your gift

Time to unwrap

Nothing is better than cars

Especially for Aiden

They love their Aunt

Evan explores his new toys

Another one to open

Aiden was too busy with his new car to care about any other gifts

Loving them!

Another one for Ethan

DVDs (or as they say, “V-V-D”)

Aiden finally moved on to his coloring pad

You too, Aiden! I had no idea you could write!

Evan explores…he loves coloring and this is perfect

Bedlam!

This picture describes the day…messy, bedlam, crazy…but happy and full

Aiden loves playing with the bus

Ethan has gotten very good at building towers

Evan is so adorable

What a mess!

He hates having dirty hands

Mommy and her babies

Wild man

So cute!

The boys getting their medicine right before bedtime

Time to brush

Ethan, are you up to no good?

Cute little bear (with a milk mustache)

Don’t stick your hand in front of the camera

Amisha takes Aiden for a ride

The weather outside is frightful…

And its even cold indoors! The temperature has been as low as 21 degrees which is truly insane in Texas. Back in the northeast, that was nothing. It even snowed several days ago!

We have a ton of images from Thanksgiving. Among other things, the boys love to destroy things, drive, play with computers, collect acorns, go for walks and stare at the moon. On that last point, we think we know who the “man in the moon” really is. Take a look below.

The boys love to build big towers!

And then laugh when they knock them down

Aiden, show me your smile

Ethan, you are not supposed to be rocking the chair!

Buddies

Ethan is flying so high!

Grandpa loves his little hairball

Evan is showing Uncle Sachin how to use the Blackberry

Grandma taking Aiden for a stroll

Uncle Sachin knows how to get the boys moving along by showing them the phone

Time for a picture break!

What a face!

Two going on sixteen

Meanwhile, Aiden is playing hide’n’seek with Grandma

Evan goes head first!

Ethan, wrong way!

Climbing

Sliding

Swinging

Grandpa gives Ethan a big push

Aiden loves his Papa

The higher the better

Aiden wants to be pushed

The man in the moon (and now we all know who that is)

Evan is trying to find Mr. Moon

Grandpa helps him

So sweet

A penny for your thoughts, Aiden

Papa teaches them about money

Aiden takes a slide

Aiden, don’t look so intimidated

Papa and Ethan walk home together

One little…

Two little…

Three little Indians.

The real chief

The assistant chief

Sharing is caring

The twins in their very own car!

Amisha shows the boys how to play with their new race track

Excuse me, can I bother you for directions?

Cold, wet, and naked….not the best time for a picture

Tongue action

The twins have moved on from their ABC’s to health science

Mr. Owl gets night time kisses

Someone looks tired

Ethan is so focused

Twins, it is very cold outside so bundle up

Aiden, please leave your shoes on

Rascal!

Daddy and “Ethey”

Daddy shielding his boo bear from the cold

Aiden, put your gloves on! It’s cooooold.

Amisha bundled up

Evan collects acorns

While Aiden laughts it up

Amisha and Ethey pose for a picture

And then he runs away